Long Covid Europe
Long COVID Europe (LCE) is a European network of Long COVID (LC) patient associations run by (current and former) LC patients. LCE was founded because many LC patient organizations were struggling with the same issues. LCE creates economies of scale by sharing relevant resources, know-how, and contacts with its members.
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Our Mission statement
We offer unique expertise as a patient network, helping third parties cover their patient-centric blind spots. We gather information concerning LC to curate and share with LC stakeholders.
Our Vision statement
Recognition of Long COVID as an impactful pandemic within the COVID-19 pandemic that urgently needs to be addressed by governments and the healthcare sector, with physical causes, also affecting young people.
Research and knowledge distribution via extra funding for patient-centric LC research in multi-disciplinary networks, with an urgent focus on trustworthy diagnostics and ways to eliminate hurdles for patient rehab.
Rehabilitation based on medical needs using a multi-disciplinary approach, freed from counterproductive administrative and financial hurdles, with sufficient support for those with little or no access to informal care.
LCE meets@WHO_Europe 17/11-21
LCE representatives from to discuss key messages by patient organisations and elaborate on joint activities. WHO Europe is committed to include patients in tackling #LongCovid and we are looking forward to our cooperation.
Following the invitation by @WHO_Europe, today, LCE participated in the first 3/12-21
Our key messages:
● Ensure HCWs have access to correct information
● Identify barriers faced by HCWs & provide solutions
● Listen to #LongCovid patients